Illustration and Design Asset created for Health Union, LLC Spinal Muscular Atrophy Community “Adjusting to Life’s Transitions”.

The tone of the SMA community is commonly hopeful as it usually centers around medical advancements and treatments, life as a disabled individual or as a caregiver of one, normalizing living with disability, and dealing with the challenges that come with a progressive disease.

In this article, the now adult writer with SMA reflects on transitioning through life in both age and the changing needs of his disease as he ages and how the transition from child to teen to young adult are particularly difficult as folks with SMA typically require more physical assistance as they age.